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On November 12, 2005 at 7:30 p.m. EST/PST, HBO premiered "I Have Tourette's but Tourette's Doesn't Have Me." TSA has been intimately involved in every aspect of the production of this very important documentary and we hope that you'll help us share it with as many people as possible.
The film dispels many of the common myths about TS by letting children tell their own stories. It is moving, informative and insightful. It's also an excellent starting point for candid discussion with friends, neighbors and everyone who can have an impact on the lives of children with TS.
In November 2005, we introduced the concept of TSA screening parties for the film, with a goal of having 1,000 plus screening parties on the night of the premiere. That initiative was extremely successful, and we invite you to continue to host these valuable awareness events. On this page, you'll find a timeline and tip sheet to assist you in making it happen.
Whom should you invite? Your child's classmates and teachers; scout troop members and leaders; the soccer team and coaches; the karate class; the PTA; your neighbors; your extended family -- anyone who you think can benefit from viewing this important documentary. Watching this movie as a group is a wonderful opportunity to answer questions that your friends may have been afraid to ask and will expand the circle of people who understand TS.
"I Have Tourette's but Tourette's Doesn't Have Me" shows children at school, at home, at camp, playing in a band, at the beach and everywhere other kids go. The children featured in the film are charming, talented, funny and articulate. They communicate the essential message that TS is simply a neurological disorder and not the defining aspect of them as individuals.
The DVD is available on the TSA Web site. In addition to the documentary, the 30-minute long DVD has special extras including input from TSA's own experts John Walkup, MD, Susan Conners and Evan Trost, MD.
This is an on-going program, and after the initial ‘1000 night’ event, this is the perfect item to use as the center of any program, meeting, conference, public relations program, educational advocacy program, public policy program or fundraiser. There are no limits to how many ways this may be used effectively.
This Web page and materials consist of a complete template program surrounding the HBO documentary that can be adapted to the size/capability of individual chapters. This comprehensive kit includes: grant writing/fundraising; public relations/awareness; and education/advocacy components. You can utilize these materials any way you see fit.
We look forward to hearing about your events and programs surrounding this exciting, ground-breaking initiative.
For questions or further information, please contact: Sheri Boyd at tiba@telenet.net
©2007,2008 Tourette Syndrome Association, Inc. 42-40 Bell Boulevard / Bayside NY 11361 / 718-224-2999