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TSA DBS Registry

An International Database for Deep Brain Stimulation Research in Tourette Syndrome

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DBS Project Participants

Project Advisor
Jonathan Mink, M.D., Ph.D.
University of Rochester Medical Center
Co-Chair, Scientific Advisory Board, Tourette Syndrome Association, Inc.

Project Administrator
Kevin St. P. McNaught, Ph.D.
Vice President, TSA Medical and Scientific Programs

Project Leaders
Michael S. Okun, M.D.
Associate Professor of Neurology, National Medical Director of National
Parkinson Foundation, Co-Director Movement Disorders Center, University of Florida

Jorge L. Juncos, M.D.
Associate Professor of Neurology, Neurology @WWHC, Emory University School of Medicine

Lauren Schrock, M.D.
Assistant Professor of Neurology, University of Utah

Mauro Porta, M.D.
Director, Tourette Clinic
Ospedale IRCSS Galeazzi

Veerle Visser-Vandewalle, M.D., Ph.D.
University Medical Centre
Maastricht Institute for Neuromodulative Development


Project Coordinator
Agnes Njoh

Contributors/Data Sharing Committee Collaborators

Yves Agid, M.D., Ph.D.
de Neurosciences
Universite Paris VI
CHU Pitie-Salpetriere

Dr. William S. Anderson
The Johns Hopkins University

Kelly D. Foote, M.D.
University of Florida, MDC

Andreas Hartmann, M.D.
Département de Neurologie
Pôle des Maladies du Système Nerveux & Centre de Recherche
de l’Institut du Cerveau et de la Moelle Epinière
Groupe Hôspitalier Pitié-Salpêtrière

Peter Hollenbeck, Ph.D.
Co-Chair of Tourette Syndrome Association’s Scientific Advisory Board
Purdue University

Takanobu Kaido, M.D.
Department of Neurosurgery
National Center Hospital of Neurology and Psychiatry
National Center of Neurology and Psychiatry (NCNP)

Carine Karachi, M.D., Ph.D.
INSERM U679
Hôpital de la Salpêtrièr

Suketu M. Khandhar, M.D.

Sacramento Medical Center
Kaiser Permanente
Dept. of Neurologye

Paul S. Larson, M.D.
Associate Clinical Professor of Neurological Surgery
Chief, Neurosurgery Service, Veterans Affairs Medical Center
University of California, San Francisco
Department of Neurological Surgery

James F. Leckman, M.D.
Neison Harris Professor of Child Psychiatry & Pediatrics
Director of Research
Yale University School of Medicine

Andres M. Lozano, M.D., Ph.D.
Professor and Dan Family Chairman of Neurosurgery, University of Toronto
RR Tasker Chair in Functional Neurosurgery, Toronto Western Hospital
Senior Scientist, Toronto Western Research Institute

Luc Mallet, M.D., Ph.D.
Institut National la Sante et de la Recherche Medicale
AVENIR Group, Emotion, and Basal Ganglia
Groupe Hospitalier Pitié-Sapêtrière

Roger L. Melvill, M.D., Ph.D.
212 Constantiaberg Medi-Clinic
Burnham Road, 7800 Plumstead
Cape Town, South Africa

Alon Y. Mogilner, M.D.
North Shore – Long Island Jewish Health Systems

Soledad Navarro, M.D.
Hôpital de la Salpêtrière

Michael H. Pourfar, M.D.
Neurologist
North Shore – Long Island Jewish Health System

Alberto Priori, M.D., Ph.D.
Padiglione Ponti
Departimento di Scienze Neurologiche
Universita di Milano
IRCCS Ospedale Maggiore Policlinico

Domenico Servello, M.D., Ph.D.
Functional Neurosurgery Unit
Tourette Syndrome & Movement Disorder Center
Istituto Galeazzi IRCCS

Amber Jo Stocco, M.D.
Assistant Professor of Pediatrics
Medical Director of Movement Disorders Clinic
Co-Director, Cerebral Palsy Clinic
Baylor College of Medicine

Marie Vidailhet, M.D., Ph.D.
Fédération de Neurologie
Hôpital de la Salpêtrière

John Walkup, M.D.
Co-Chair of Tourette Syndrome Association’s Medical Advisory Board
Weill Cornell Medical College
New York Presbyterian Hospital

Benjamin L. Walter M.D.
Medical Director, Deep Brain Stimulation (DBS) Program,
University Hospitals Case Medical Center
Neurological Institute

Marie-Laure Welter, M.D., Ph.D.
Fédération des Maladies du Système Nerveux
Centre d’Investigation Clinique
Groupe Hospitalier Pitié-Sapêtrière


Jafri Malin Abdullah, M.D., Ph.D.
School of Medical Sciences
Universiti Sains Malaysia

Ron Alterman, M.D.
North Jersey Brain and Spine Center

Hooman Azmi-Ghadimi, M.D.
Beth Israel Hospital

Tahamina Begum, M.D., Ph.D.
School of Medical Sciences
Universiti Sains Malaysia

Shalini Bhaskar, M.D.
Hospital Kota Bharu

Richard G. Bittar, M.D.
Australasian Movement Disorder & Pain Surgery
(AMPS) Clinic

Chris P. Buehrle, MD, PhD
Neurosurgery, University Hospital of Cologne

Philippe Cornu, MD
Hôpital de la Salpêtrière

Terry Coyne, M.D.
Brizbrain & Spine
Neurosurgery & Spine Surgery
Wesley Hospital

Mahlon R. DeLong, M.D.
Emory University

Emad N. Eskandar, M.D.
Massachusetts General Hospital

Alice Weaver Flaherty, M.D., Ph.D.
Massachusetts General Hospital

Abdul Rahman Izaini Ghani, M.D.
School of Medical Sciences
Universiti Sains Malaysia

Wayne Goodman, M.D.
Mount Sinai School of Medicine

Benjamin D. Greenberg, M.D., Ph.D.
Warren Alpert Medical School of Brown University

Robert E. Gross, M.D., Ph.D.
Emory University

Jorge Guridi, M.D., Ph.D.
Clinica Universidad de Navarra

Ihtsham ul Haq, MD
Wake Forest University

Badrisyah Idris, M.D.
School of Medical Sciences
Universiti Sains Malaysia

Zamzuri Idris, M.D.
School of Medical Sciences
Universiti Sains Malaysia

Zvi Isreal, M.D.
Hadassah University Hospital

Juan-Yu Li, M.D.
Xuanwu Hospital
Capital Medical University of Medical Services

Alain de Lotbiniere, M.D.
Brain & Spine Surgeons of New York

Warren A. Marks, M.D.
Cook Children’s Medical Center

Muzaimi Mustapha, M.D.
School of Medical Sciences
Universiti Sains Malaysia

Liang Qiao, M.D., Ph.D.
Xuanwu Hospital
Capital Medical University

Mohammed Faruque Reza, M.D., Ph.D.
School of Medical Sciences
Universiti Sains Malaysia

Donald E. Richardson, M.D.
Tulane University

Dr. Marco Sassi, M.D.
Neurochirurgia, IRCCS Galeazzi

Peter A. Silburn, M.D.
Watkins Medical Centre

Philip A. Starr, M.D., Ph.D.
San Francisco Veteran’s Affairs Medical Center
University of California, San Francisco

Volker Sturm, MD

Uniklinik Koeln
University of Cologne

Yasin Temel, M.D., Ph.D.
Maastricht University Medical Center

John Tharakan, M.D.
School of Medical Sciences
Universiti Sains Malaysia

Abdul Aziz Mohamed Yusoff, Ph.D.
School of Medical Sciences
Universiti Sains Malaysia





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