Tuesday, March 18 to Thursday, March 20
Newly Diagnosed Seminar - Thursday, March 20, 9am - 5pm
The all-day Newly Diagnosed Seminar is for the parents of a recently diagnosed child, recently diagnosed adults/young adults, or anyone attending the TSA National Conference for the first time. This seminar is an exceptional pre-conference program led by Dr. John Walkup, Director, Division of Child and Adolescent Psychiatry Weill Cornell Medical College and New York-Presbyterian Hospital.
Dr. Walkup has a special way of sharing insightful suggestions for helping you to understand Tourette Syndrome and its associated disorders. He will also provide everyday coping strategies and behavioral management tools for with living TS. This seminar will also prepare you for processing, retaining, and applying the immense amount of information disseminated during the General Sessions.
Youth Ambassador Training
From its beginnings in 2005, the TSA Youth Ambassador Program is an ever-expanding group of teens with TS (or their siblings, friends and classmates) who speak about Tourette Syndrome to their peers at school, sports leagues, scout troops, camps and after school programs. The purpose of the program is to spread tolerance of and understanding about TS.
The Youth Ambassador Program seeks at least one youth/parent (or adult guardian) team from each TSA chapter (or at least one team per state not served by a TSA chapter) for this training. Youth Ambassador teams will participate in workshops that provide them with tools about how to educate their peers about Tourette Syndrome.
Teen/parent teams from across the country will arrive in Arlington, VA on the 18th for an informal meet & greet in the evening.
Training will be held on Wednesday, March 19th. That evening, the groups will participate in an informational “Trip to the Hill” dinner that will prepare them for the “Trip to the Hill” on Thursday, March 20th.
Youth Ambassadors are chosen through an application process. Click here for more information, and click here for an Application. You must be a member of TSA to attend the Youth Ambassador Training Program. To become a TSA member, please click here.
Chapter and Support Group Leadership Training
New TSA chapter and support group leaders and volunteers are invited for a “101 course” on chapter leadership. The expert-led, volunteer-facilitated workshops will discuss “best practices” approaches to fundraising, marketing, volunteer development, governance, and more. This pre-conference also includes participation in TSA's annual Trip to the Hill (including the annual Congressional Briefing).
TSA Chapter leaders and key volunteers from across the country will arrive in Arlington, VA on the 18th for an informal meet & greet in the evening.
On the 19th, Chapter and Support Group Leaders will be briefed on “best practices” approaches to fundraising, marketing, volunteer development, governance, and more. That evening, the group will participate in an informational “Trip to the Hill” dinner that will prepare them for the “Trip to the Hill” on Thursday, March 20th.
To attend the Leadership Conference, please contact your local chapter or affiliated support group. You must be a member of TSA to attend the Leadership Conference. To become a TSA member, please click here.
TSA'S Annual Trip to the Hill - Thursday, March 20
The TSA facilitates an annual “Trip to the Hill” to give its members an opportunity to visit their Congressional Members on Capitol Hill. This event is an exciting and important part of our National Conference, gathering folks affected by TS from across the country to participate in Congressional meetings. Approximately 100-150 Congressional meetings will take place on Thursday, March 20th.
If you are not attending the Leadership Training or Youth Ambassador Training but would like to register to attend the “Trip to the Hill”, call TSA's Field Services office at 718-224-2999, Ext.251. The registration fee is $140 which includes dinner on Wednesday, March 19th as well as breakfast, lunch and transportation to/from Capitol Hill on Thursday.
All Trip to the Hill participants must attend a mandatory conference call (date TBD) and the dinner on Wednesday, March 19th to ensure that they have productive and engaging meetings with their members of Congress. Hill appointments must be made in coordination with your local TSA Chapter and TSA’s Government Relations Department. Read more about the Trip to the Hill and Advocating for TS.
Thursday, March 20 to Sunday, March 23
Conference Check-in begins
Check-In opens in the afternoon on Thursday, March 20th for those attending the National Conference
National Conference General Sessions
Click here to View/Download/Print 2 Page Schedule (Adobe PDF™ format)
National Conference begins Friday morning with a plenary Welcome Breakfast.
General Sessions on Friday and Saturday will include Medical & Behavioral, Education Resources, Adult, and Teen tracks. Sessions will be presented by leading professionals and inspiring speakers.
On Sunday, we wish you a safe trip home with a light breakfast and memories to last a lifetime!
Additional Conference Events
> TSA Awards & Entertainment Banquet
Join us Saturday, March 22nd for a wonderful evening of dinner and entertainment at which we will present the Viktoria Holm Kramer Volunteer Recognition Award, the Wendy Anne Ochsman Award for Distinguished Achievement and Advancement of Tourette Syndrome Medical Treatment and Science, the Zak Hollis Youth/Youth Group Achievement Award, the Distinguished Educator Award, Lifetime Achievement Award, as well as our Public Policy and Youth Ambassador Awards.
The Awards Banquet is included in the registration for the full conference. Anyone who cannot attend the conference but would like to attend the Banquet must register.
>Monumental DC: An evening bus and walking tour hosted by the Greater DC Chapter
See DC in a new way! Join your TSA friends on Friday, March 21st for a unique nighttime tour of the Washington DC monuments and other amazing sights of our capitol city. We'll travel on comfortable tour bus, hop off to explore, and learn all about DC with a knowledgeable and entertaining tour guide. Tour starts at 7pm and will finish between 10-11pm. The tour is limited to 50 participants and registrations will be taken until the bus is filled on a first-come, first served basis. You can register online or at a later date by email (firstname.lastname@example.org). Fee: Adults (age 18+) - $40 and Children/Teens (under age 18) - $35. For any questions, please contact TSA of Greater Washington at email@example.com.
||Until March 19, 2014
|Full Conference - includes Saturday Night Banquet (Member)
|Full Conference - includes Saturday Night Banquet (NonMember)
|Conference One Day Pass - Friday, March 21 (Member)
|Conference One Day Pass - Friday, March 21 (NonMember)
|Conference One Day Pass - Saturday, March 22 (includes Saturday Night Banquet) (Member)
|Conference One Day Pass - Saturday, March 22 (includes Saturday Night Banquet) (NonMember)
|Saturday Night Banquet Only - Adult/Over 13 (Member)
|Saturday Night Banquet Only - Adult/Over 13 (NonMember)
|Saturday Night Banquet Only - Under 13 (Member)
|Saturday Night Banquet Only - Under 13 (NonMember)
|Pre-Conference - March 20 - Newly Diagnosed Seminar (Member)
|Pre-Conference - March 20 - Newly Diagnosed Seminar (NonMember)
(Add $25 Fee for on-site Registration)
• Hotel reservations must be made separately from Conference Registration. See below for Hotel Information.
• Scholarships for Teens (14-18 yrs old) and Adults (25+ yrs old):
Funds have been established by TSA Board Members to assist those who wish to attend the TSA 2014 National Conference. Amounts awarded will be based on the individual needs of applicants, as determined by the Conference Scholarship Committee, and will cover conference registration fees only. Travel and hotel expenses are the responsibility of the applicant.
TSA Scholarship applications were due Friday, January 31st.
If you have any questions, please contact 718-224-2999.
• Scholarships for Young Adults (18-25 yrs old):
Funds have been established by past TSA Board Member Diane Mallah and her husband Darryl Mallah to help young adults, ages 18 - 25, who wish to attend the TSA 2014 National Conference.
TSA Scholarship applications were due Friday, January 31st.
If you have any questions, please contact 718-224-2999.
Grants may be Available to Attend Conference through State Disability Councils - The National Association of Councils on Developmental Disabilities administer empowerment programs that support individuals who wish to attend educational conferences such as ours. Contact your State Disability Council to find out if resources are available to help offset the cost of attending the TSA Conference. Click here for State Disability contact information.
Help Support a Conference Scholarship
These stressful financial times have taken a toll on many of our families and we realize that many of those with TS and their families won’t be able to afford the cost of registration this year. The benefits of attending a TSA National Conference can be life-changing and your help by contributing towards a scholarship can make a great impact on someone. Even just a few dollars can make a difference! On the Registration form click on the last line before the total to contribute to a Conference Scholarship and share your conference experience.
For full conference attendees, all meals with the exception of Thursday and Friday night dinner will be included in your conference costs. On Sunday there are no sessions, but a light “farewell” breakfast will provide an opportunity to say “goodbye” to old and new friends.
Hotel reservations must be made separately from National Conference registration.
Please visit https://resweb.passkey.com/go/TouretteSyndromeAssociation to make your reservation.
In order to be guaranteed a room from the TSA block, you must book your hotel reservation prior to March 6, 2014.
Crystal Gateway Marriott
1700 Jefferson Davis Highway
Arlington, Virginia, USA 22202
TSA block room rate:
Weekday Rate (3/18-3/21): $219 per night (plus tax) for single or double occupancy, $239 (plus tax) for triple occupancy, and $259 a night (plus tax) for quadruple occupancy.
Weekend Rate (3/21-3/23): $99 per night (plus tax) for single or double occupancy, $119 (plus tax) for triple occupancy, and $139 a night (plus tax) for quadruple occupancy.
The Crystal Gateway Marriott is very close to the DC-metro area – it features a complimentary shuttle to the airport and easy access to Metro transportation.
The Tourette Syndrome Camping Organization (TSCO) will be hosting a Youth Program on Friday, March 21, 2014 and Saturday, March 22, 2014 during the National Conference.
The program is for children (and siblings) ages 7-14 with Tourette Syndrome and associated conditions. The program will include activities at and around the hotel on Friday as well as a tour of the greater Washington DC area on Saturday. Lunch will be provided on both days. Exact hours of the program will concur with the start and ending times of the daily conference events.
TSCO aims to provide a safe, social and fun experience for the children. Their volunteer camp staff will be on hand to ensure your child has a positive experience. Their staff consists of College and High School students along with Adults, most whom have TS and of them have come up through the program as campers.
The cost will be $275 per child. Registration is now available on the TSCO website: http://www.tourettecamp.com/registration_dc_2014.php. For questions, please contact Scott at firstname.lastname@example.org.
The Tourette Syndrome Camping Organization provides recreation programs for Children with TS including the longest running summer camp Tourette Syndrome Camp USA which just completed its 20th year.
Exhibit and Advertising Opportunities Available
Click here for more information.
to read about TSA's previous National Conference in 2012 - includes links to presentation videos and slides.