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Media/Press Inquiries: Contact TSA: 718-224-2999,
ext.236; email: tracy.flynn@tsa-usa.org
- TS AWARENESS MONTH IS MAY 15 THROUGH JUNE 15 - Click here to read about it. (05/15/08).
- TS AWARENESS MONTH - GOVERNMENT RELATIONS ACTIVITIES - TSA Friends, Family urged to take part in Government
Relations
Awareness activities during the week of May 26-June 2. Click here to read about it. (05/14/08).
- TSA'S 4th Congressional Reception in the US Capitol. Click here to read about it. (04/25/08).
- GINA (Genetic Information Non-Discrimination Act) PASSES U. S. SENATE. Click here to read
TSA Press Release. (04/24/08)
- TSA National Conference - Read about it and View photos - April 2008 TSA National Conference story and photos. Click here to view. (04/24/08).
- ACTION ALERT ! ! !- CONTACT YOUR SENATOR NOW TO URGE SUPPORT FOR GINA - Click here. (04/22/08).
- TSA URGES SENATE PASSAGE OF GINA (Genetic Information Non Discrimination Act) IN LETTER
TO SENATOR
KENNEDY.
Click here to read story, view letter. (04/18/08)
- A NEW LOOK AND A NEW NAME FOR TSA'S NATIONAL NEWSLETTER - "Inside TSA" debuts. Click here to read this and
previous issues of the TSA newsletter (read cover for free; join TSA to read full newsletters). (04/14/08).
- TSA YOUTH AMBASSADOR HONORED BY HIS CONGRESSMAN - Read more. (04/14/08).
- TSA NATIONAL CONFERENCE PRESENTATIONS ON THIS SITE - Presenters have been kind enough
to allow us to
post their slide shows of presentations made at TSA's April 3-6 National Conference; topics covered include updates
in
Medicine and Research (including Behavior Therapy), Occupational Therapy ("Toolbox for Students"), and Chapter
Leadership
Training. Click here. (04/14/08).
- "That darn tic" - spring 2008 issue of TSA's Award-winning children's newsletter is published and now available on line.
Click here to read this and previous issues. (04/10/08).
- TSA NATIONAL CONFERENCE THIS WEEK - April 3-6. Register in Person at the Hilton Alexandria Mark Center. Click here
for more information. (03/30/08).
- NATIONAL SURVEY ON ADULTS WITH TS AND CHRONIC TIC DISORDRS - TSA asks for an hour of your time to help us
serve you better. Please click here (03/27/08).
- Tourette Syndrome Association Celebrates the
House Passage of LONG-AWAITED
Mental Health Parity Legislation.
Click
here to read press release. (03/06/08).
- ACTION ALERT - Call for a YES Vote on House Mental Parity Act - click here. (03/04/08).
- TSA WEST COAST CHAMPION OF CHILDRENS AWARDS DINNER in Beverly Hills on February 27th to honor Ashley
and Jeffrey McDermott and James Marsden. Click here for details. (01/18/08).
- basal ganglia, tourette syndrome and you - TSA's new chairman, Kenneth D. Moelis asks TSA's friends and
family to
support
Tourette Syndrome research, citing cuts in government funding. Included are a letter by the
Co-Chairs
of TSA's
Scientific Advisory Board which highlights presentations of TSA-funded research at an international
Basal
Ganglia conference
and a Summary of prior
year grant awards. Click here. (01/16/08).
- "That darn tic" - WINTER 2007/8 issue of TSA's Award-winning children's newsletter is published and now available on line.
Click here to read this and previous issues. (01/03/08).
- OCCUPATIONAL THERAPY STRATEGIES FOR TOURETTE SYNDROME - New webstream with slide show; filmed at
TSA's 4/07 Leadership Conference; Marge Henning, COTA presents - click here to view (12/24/07).
- 2008 NATIONAL CONFERENCE EARLY BIRD DISCOUNT for registration extended to January 19, 2008. Click here for Conference Overview; click here for online
registration form. (12/20/07).
- HAVE YOUR VOICE HEARD! TELL US YOUR STORIES if you have experienced difficulty in getting Social Security
Administration benefits, such as Social Security payments and Medicaid/Medicare health insurance coverage. Click
here for details. (12/11/07).
- TSA testifies at U. S. Social Security Administration (SSA) Compassionate Allowance Outreach Hearingon Dec.5th. Click
here to read full story.(12/06/07)
- TSA'S 2008 NATIONAL CONFERENCE REMINDER - Pre-Conference Activities April 2-3, General Sessions April 4-6. Early
Bird Discount for registration on or before 01/01/08.
Click here for Conference Overview; click here for online
registration form. (11/21/07).
- TSA RESPONDS TO "SOUTH PARK" EPISODE - Click here. (10/04/07).
- NEW EDITION OF TSA'S YOUNG ADULT NEWSLETTER "IT'S NOT JUST FOR KIDS ANYMORE" - Online newsletter written
by and for Young Adults. Click here to read current and previous issues. (10/04/07).
- "That darn tic" - fall 2007 issue of TSA's Award-winning children's newsletter is published and now available on line.
Click here to read this and previous issues. (10/02/07).
- TSA VOICES CONCERN OVER OCTOBER 3RD "SOUTH PARK" EPISODE - Click here. (10/02/07).
- 11 YEAR OLD WITH TOURETTE SYNDROME GETS TO TOSS OUT THE FIRST PITCH AT SHEA STADIUM - Marques Seme
a young Mets fan whose favorite players are Jose Reyes and Carlos Beltran, got to toss out the first ball for the Mets September
25
game against the Nationals. Health Insurer GHI made a $1,000 donation to TSA in honor of Marques' fifth grade teacher, John
Dalmolin of PS 14 in Corona, Queens. Both Marques and his teacher were honored by the NY Daily News as a Class Act in
June. Click here to read TSA's Fall 2007 Newsletter 'Victories' item featuring the story. (09/27/07).
- 4th YEAR GRANT CONTINUES TSA/CDC PARTNERSHIP TO EDUCATE MEDICAL AND ALLIED PROFESSIONALS AND EDUCATION/SCHOOL BASED TEACHERS/CLINICIANS. Click here for details. (09/10/07).
- ACTION ALERTS - TWO IMPORTANT ISSUES - MENTAL HEALTH PARITY(click here)--Senate Bill moving closer to passage - Your Sentator needs to hear from you NOW!! and GENETIC NON DISCRIMINATION(click here)--Senate Bill Out of Committee--Full Senate Needs to Vote. Let your voice be heard on both of these issues of key importance to the TSA community.(08/15/07).
- TWO NEW VIDEO RESOURCES FOR MEDICAL PROFESSIONALS/CLINICIANS ON THIS SITE - Panel discussions
by members of TSA's Medical Advisory Board. In two sessions of approximately 1-1/2 hours each, Panel
members
discuss
"HOT TOPICS" - Controversies and Challenges in the Evaluation, Treatment and
Management of
Tourette
Syndrome.
Access
to these webstreams requires registration by Medical and Allied Professionals. Completion
of an online
Medical/Professional
Survey after viewing is requested.
Click here to register. (08/10/07).
- ACTION ALERT - MENTAL HEALTH PARITY - Urge your U. S. Senator to get Mental Health Parity bill to the floor
and
get it passed as
soon as possible. We have a real chance to get this Mental Health Parity legislation passed if we all
act NOW; this issue is critical
to all families
affected by TS. Click here to take action. (08/09/07).
- "PASSING THE TORCH" - letter from TSA's Chairman, Monte Redman, and President, Judit Ungar, highlights TSA's
Youth Ambassador program, other outreach and media successes, cites need for expansion. Click here to read. (08/09/07).
- TSA ISSUES AN UPDATED STATEMENT ON DBS (Deep Brain Stimulation) AND TOURETTE SYNDROME. Click here
to read (08/02/07).
- "That darn tic" - sUMMER 2007 issue of TSA's Award-winning children's newsletter is published and now available on line.
Click here to read this and previous issues. (07/16/07).
- TAKE ACTION - TS Government Relations Awareness Week is May 28th-June 1st -
Raise Awareness of TS with
your elected officials. Click here. (05/27/07).
- TOURETTE SYNDROME ASSOCIATION CELEBRATES ITS
35TH ANNIVERSARY AS IT KICKS OFF NATIONAL
TS AWARENESS MONTH. Click here for story. (05/11/07).
- TSA WEBSTREAM,
DR. JOHN WALKUP'S "DIAGNOSING & TREATING TOURETTE SYNDROME "
wins AAMC's
MedEdPORTAL
Approval. MedEdPORTAL is designed to assist professors and deans of medical education to find
teaching resources.
The approval entitles TSA to display the AAMC Approval logo.
Click here for details (04/27/07).
- LONG ISLAND, NY EDUCATORS CONFERENCE - ONLINE REGISTRATION CLOSED - Due to an early and gratifying
response from Educators for this 5/18/07 conference, online registration is now closed. (04/16/07).
- "That darn tic" - spring 2007 issue of TSA's Award-winning children's newsletter is published and now available on line.
Click here to read this and previous issues. (04/09/07).
- TSA launches new ad campaign featuring actor and comedian Richard Lewis. The four public service announcement (PSA)
ads shed light on the misconceptions about TS and highlight the importance of public understanding about the disorder. Click here
for full story and link to view streaming media.(04/06/07).
- long island, ny educators conFERENCE
05/18/07 announced - Supported by the offices of NYS Senators Charles J. Fuschillo, Jr. and Senator Michal A. L Balboni - open to all
Long Island Educators and Clinicians - FREE! Click here for flyer and
link to online registration. (03/23/07).
- TSA NEEDS YOU TO TAKE ACTION - Urge your U.S. Representative to support the TS Public Health, Education and Research Program to continue TSA's partnership with CDC to educate medical, education, and allied professionals, many in underserved areas.. We've had wonderful results with this outreach program for the past 3 years--but, we need to reach more educators and medical practitioners. Please click here and look for Action Alert. Thank you. (03/16/07).
- HSBC Sponsors Tourette Syndrome Conference for Brooklyn-Based Educators - February 28th Conference Training
draws enthusiastic response. Click here to read about it. (03/10/07)
- 10TH ANNUAL CHAMPION OF CHILDREN AWARDS DINNER - Star studded event on February 15th - click here. (03/10/07).
- TSA's 3rd ANNUAL CONGRESSIONAL RECEPTION - Prominent Congressional leaders were in attendance for TSA's annual event in Washington. Click here for story.(03/06/07).
- MAB/SAB MEETINGS - Click here for report on February 2007 Tourette Syndrome Association MAB (Medical Advisory Board) and SAB (Scientific Advisory Board) meetings in Atlanta.(03/02/07).
- dR. WALKUP NEWLY DIAGNOSED VIDEO ON THIS SITE - Extremely positive feedback from viewers - "not to be missed", "excellent", "valuable"-Viewers have noted the clear discussion of co-occuring conditions, and practical Parenting Tips - click here for news item and link to video(02/28/07).
- "GETTING OLDER WITH TS" - A new article by Mitzi Waltz, in TSA's Living with TS: Adult Issues section, discusses challenges and suggests ways to "take charge". Click here to view. (02/10/07).
- SELF ESTEEM - A NEW WEB VIDEO FOR ADULTS WITH TS - Paul Devore, successful California businessman, and former Chairman of TSA, addresses the issue of Self Esteem for persons with Tourette Syndrome. He discusses his life experience and lays down the principals for success and for building a good foundation for Self Esteem. The video runs for 24 minutes; a transcript in pdf format is downloadable. Click here to view. (02/08/07).
- NATIONAL CONFERENCE 2008 PRELIMINARY SCHEDULE - TSA's next national Conference will be April 4-6 2008 in Alexandria, Virginia (Pre-Conference activities begin April 2). Click here to view Conference Overview. (02/07/07).
- "TS IS MORE THAN TICS" (Other Important Issues to be Considered) - Education Advocacy article by Kathy Giordano, TSA's Education Advocacy Specialist posted to this site- click here to read (02/08/07).
- "teens talk with parents " - new tsa publication - Real teens tell parents and adults what it's really like for them to live with Rourette Syndrome. A clear unvarnished insight into the way that teens with TS think and feel. This booklet will help "start the converations between teens and parents everywhere. Both groups will learn a lot from each other. Available in our online store for order, or for immedicate download (look for publication A104, A104DD). (02/06/07).
- "That darn tic" - winter 2006/7 issue of TSA's Award-winning children's newsletter is published and now available on line Click here to read this and previous issues. (01/23/07).
- West Coast TSA Champion of Children Awards Dinner to honor UBS' Navid Mahmoodzadegan and actor Kevin Connolly. Click here for story. (01/10/07).
- TSA plans Chapter Leadership Training and Trip to the hill - click here for full story. (01/10/07).
- TSA WEBSITE to undergo re-design in the next few months - look for a new menu structure which will ease site navigation; a site search has already been implemented (bottom of main page only). (01/05/07).
- brooklyn educators conFERENCE
02/28/07 announced - (re-schedule of
cancelled 11/14/06 conference). Supported by a generous grant from HSBC;- open to all
Brooklyn Educators and Clinicians - FREE! ONLINE REGISTRATION IS NOW CLOSED - CALL US FOR FUTHER INFORMATION AT 718-224-2999. (updated 01/25/07)
- "GRANT REQUESTS GROW, GOVERNMENT FUNDS SHRINK" - tsa Asks its
supporters to fund research, filling the gap caused by drastic cuts
in government funding. Click here to read letter by Co-Chairs of TSA's Scientific Advisory Board and a Summary of prior
year grant awards.(12/12/06).
- tourette syndrome association
requests the inclusion of Mental health parity within medicaid. Click here to read more about TSA's November
16, testimony before the Medicaid Commission. (12/05/06).
- NEWLY DIAGNOSED
webstream VIDEO PREMIERES ON TSA WEBSITE - Filmed at an all-day Newly
Diagnosed Seminar at TSA's 2006 National Conference - click here for story (11/11/06).
- TSA POSTS WEBSTREAM professional education program, "USING Behavior Therapy TO MANAGE TIC DISORDERS IN CHILDREN" by Douglas W. Woods,Ph.D., Associate Professor of
Psychology, University of Wisconsin-Milwaukee Milwaukee, Wisconsin, filmed 07/07/2006 at the NYU Child Study Center joins TSA online education resources for Medical and Allied
Professionals. Click here to register and view(10/25/06).
- TSA Medical advisory board member Cheston Berlin, m.d. Receives 5th
Annual Sumner J. Yaffe Award Click here to read more about the respected pediatrician's honor. (10/25/06).
- "That darn tic" - Fall 2006 issue of TSA's Award-winning children's newsletter is published and now available on line Click hereto read this and previous issues. (10/25/06).
- TSA SETS NEW LOW PRICE ON EDUCATORS
CURRICULUM - to make this Resource available to more educators, TSA
has reduced the price of the TSA Educators' Curriculum 2 CD Set to $20 (non-members) and $10 (members). Click here to go to our online store. (10/10/06).
- The HBO-TSA documentary, "I Have Tourette's but Tourette's Doesn't Have Me" wins a clarion Award. Click here to read more about the award given by the Association for Women in Communications. (10/04/06).
- MTV award-winning
SERIES "TRUE LIFE" TO FEATURE YOUNG ADULTS WITH TS "I Have Tourette Syndrome" episode to air on Tuesday, October
10. Click here for more information. (09/29/06).
- 3rd YEAR GRANT CONTINUES TSA/CDC PARTNERSHIP TO EDUCATE MEDICAL AND ALLIED PROFESSIONALS AND EDUCATION/SCHOOL BASED TEACHERS/CLINICIANS. Click here for details. (09/27/06).
- TSA YOUTH AMBASSADOR RESOURCES ON
THIS SITE. TSA's Youth Ambassador program's video, downloadable
IPOD video and MP3 audio, presentation outline, resource materials, slide show,
class handout and visual aids are now available. Click here to view (09/26/06).
- Unprecedented Cross Institute
Collaboration on Behalf of Patients with Tourette Syndrome. Click here to read more about
the special meeting held with scientists, experts and NIH agency staff to
develop strategies and find improved treatments for children and adults with TS.
(09/20/06).
- brooklyn educators conference
11/14/06 is announced. Supported by a generous grant from HSBC- open to all
Brooklyn Educators and Clinicians - FREE! Click here for Announcement (Adobe Acrobat™ format) and Online Registration (09/02/06).
- The HBO-TSA
documentary, "I Have Tourette's but Tourette's Doesn't Have Me" wins a
media access Award. Click here to read more about another award
for the documentary. (08/30/06).
- The HBO-TSA
documentary, "I Have Tourette's but Tourette's Doesn't Have Me" wins a
voice Award. Click here to read more about the award. (08/25/06).
- TSA POSTS
CNE (CONTINUING NURSING EDUCATION) PROGRAM ON THIS SITE. Larry Scahill,
MSN, PhD, program, filmed 05/06/2006 at the University of Texas Health Science
Center at San Antonio School of Nursing joins CME presentations, enhances
professional education opportunities on this site. Click here to register and view (08/24/06).
- emmy for outstanding
children's program goes to "i have tourette's but tourette's doesn't have me".Click here for story. (08/20/06).
- MAJOR
VICTORY FOR CHILDREN WITH TOURETTE SYNDROME - Individuals with
Disabilities Education Act to Classify Tourette Syndrome as Other
Health Impaired. Click here to read news release.(08/03/06).
- Call for research
proposals is announced, beginning TSA's 2006-07 grant award cycle. Click here to read about it. (08/03/06).
- "TARGETING THE BRAIN TO
FIND THE CURE" - TSA urges participation in Brain Bank
program, cites the need to pursue promising studies. Click here to read about it. (08/01/06).
- 4TH ADDITION TO THIS SITE'S CME
OFFERINGS: DR. SAMUEL H. ZINNER, M.D., TOURETTE SYNDROME: Tackling
a noisy tic disorder without a whisper about medication. TSA presents, for Continuing Medical Education credits, the webstream of Dr. Zinners's 6/01/06 presentation at the Seattle, Washington Children's Hospital and Regional Medical Center. Click here to
register and view. (07/26/06).
- NEW CME PROGRAMS ON THIS SITE -
INCLUDING A SPANISH LANGUAGE PRESENTATION - Two presentations
for CME credit (one in English and one in Spanish) by Dr. Jorge L.
Juncos, Emory University School of Medicine add to the Medical and
Allied Professional Resources on this site. Click here to
register and view. (07/20/06).
- "I Have Tourette's but Tourette's
Doesn't Have Me" receives TWO Emmy nominations - One for
Outstanding Children's Program and one for Outstanding Cinematography
For Nonfiction Programming - Single-Camera Productions. Click here to read more about
our honor by the Academy of Television Arts & Sciences. (07/06/06).
- The HBO-TSA
documentary, "I Have Tourette's but Tourette's Doesn't Have Me" has
won a Parents’ Choice Award™. Click here to read more about the
award. (06/30/06).
- "Greetings
from grammy" - a letter from Elaine Fantle Shimberg about tsa's
grandparents' club. Click here.
(06/15/06).
- TSA MAB CHAIRMAN JOHN
WALKUP, MD, AND TSA SAB CO-CHAIRS, JONATHAN W. MINK MD, PhD
AND PETER J. HOLLENBECK, PhD, EDIT NEW SCIENTIFIC AND CLINICAL TEXTBOOK ON
TOURETTE SYNDROME. Book is based on the proceedings of TSA's 4th
International TS Symposium, Cleveland, 2004. Volume 99 in the prestigious
series, Advances in Neurology. Publisher offers TSA members 25% discount.
Click here to read flyer. (05/17/06).
- research and medical updates - medical and scientific presentations
on tourette syndrome, from the 2006 National CONFERENCE. Presenters have generously made their slide shows available on this
website. Click here to
view. (04/28/06).
- Tsa's children's newsletter, "that darn tic," wins 2006
communicator award. Click here to read more about the award process. (04/13/06).
- FOURTH ANNUAL TSA
CONGRESSIONAL BRIEFING A SUCCESS. Tourette Syndrome Youth
Ambassadors call on Congress for action and continued support for TS. Click here to read more about this annual
event in Washington D.C. (03/22/06).
- TSA COMMENTARY ON "MEDICAL
INCREDIBLE" AND "MIRACLE WORKERS" PROGRAMS. Click here for the Association's
reaction to the two national television programs about patients who
have undergone deep brain stimulation surgery. (03/16/06).
- TSA eXPANDS ITS MARATHON PROGRAM - CALLS ON RUNNERS,
WALKERS and onlookers to join "Team TSA" and
help us get "One Lap Closer to a Cure". See
how to participate (02/17/06).
- greatest progress in
science funded by tsa research - Click here for Research
Appeal, details on Research Grant Awards (01/25/06).
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